Association EUPATI CH

We bring patient, academic and industry partners together to discuss patient education and patient involvement in medicines research and development (R&D). Working together, we raise awareness about the important role of patients, and members identify challenges and opportunities for joint action.

Membership of EUPATI CH is open to all, including government officials, regulatory bodies, healthcare professionals, social care workers, medical journalists and other interested national partners.

If you are interested in learning more about EUPATI CH, attending our events, or even helping set the future strategy around patient education in Switzerland, please contact us.

VISION

EUPATI CH – Patient input for better medicines!

MISSION

Fostering partnerships with medicines R&D stakeholders to promote public involvement in all aspects of medicines R&D. Contributing to patient empowerment for active involvement in medicines R&D and supporting public awareness raising for the EUPATI education material.

OBJECTIVES

EUPATI CH aims to act as the central point for inquiries and cooperation platform for patient empowerment and involvement in medicines R&D processes in Switzerland. In this regard we seek to cooperate with existing patient organisations without the intention to compete them in any way. Further to this, the following activities shall be undertaken or promote:

  • Contributing to patient empowerment for active involvement in medicines R&D.
  • Supporting public awareness raising for the EUPATI education material.
  • Fostering partnerships with relevant stakeholders in Switzerland to promote public involvement in all aspects of medicines R&D.

VALUES

Objectivity, transparency, ethical conduct, equity, and independence are vital prerequisites to ensure that EUPATI CH achieves its goals and is accepted and valued by both the patient community and the wider public. Core to this are transparency, independence and trust.

The members of the EUPATI CH serve on a voluntary basis and in their individual capacities as experts in their fields or as representatives of their patient organisations, academic or research institutions, health authorities or pharmaceutical companies.

EUPATI CH Executive Board 2020

President
Ivo Schauwecker (Patient and academic representative)

Vice-President
Hansruedi Völkle (Positivrat Schweiz)

Other board members
Rosmarie Pfau (lymphome.ch, EUPATI Fellow)
Marie Mi Bonde Hansen (USB Basel)
Cristiana Sessa (EOC Ticino)
Annette Magnin (SCTO)
Larisa Aragon (Patient and academic representative)
Stephan Schobinger (Patient and academic representative)
Catherine Bates (Academic representative)

Secretariat
Caecilia Schmid (SCTO)

Communications officer
open for application

Treasurer

open for application

Members

Patient representatives and organisations
Positivrat Schweiz
lymphome.ch Patientennetz Schweiz
Krebsforschung Schweiz
FMF & AID Global Association
Schweizerische Morbus Crohn / Colitis ulcerosa Vereinigung (SMCC )
Patient Advocate for Cancer Research and Treatment (PACRT)
Verband Nierenpatienten Schweiz (VNPS)
Association Romande du Syndrome de Sjögren
SMA Schweiz

Academic representatives and organisations
University Hospital Basel (USB)
Ente Ospedaliero Cantonale (EOC)
Clinical Trials Centre, University Hospital Zürich
Swiss Clinical Trial Organisation (SCTO)
Gesundheitsbildung Schweiz
Schweizerische Arbeitsgemeinschaft für Klinsche Krebsforschung ( SAKK)

Pharmaceutical Industry and for-profit organisations
Janssen-Cilag AG
Bristol-Myers Squibb

Individual members
Matthew May
Peter Lack
Dr. Brigitte Franke-Bray
Stéphane Charbon
Emilie Berger
Prof. Uyen Huynh-Do
Dr. Julia Amann
Max Lippuner
Steven Bourke
Debra De Silva-Sun
Vanya Loroch
Judith Safford
Anne-Lise Ducournau Lichtenberg
Lucie Hofmann
Ivo Schauwecker
Larisa Aragon Castro
Ayomi Gunawardhana
Catherine Bates
Dr. Stephan Schobinger
Rosine Mucklow
Beatrice Heim

Membership application

Membership of EUPATI CH is open to all interested persons: patients, patient advocates, patient organisations, consumer organisations, academics, institutions, university hospitals, healthcare associations, industry representatives, companies, government agencies representatives, regulatory authorities, medical journalists.

Please send your completed application form for membership to the Executive Board, via its secretariat. By applying for membership (in writing or verbally) you automatically agree with our statutes.

The Executive Board will inform you on its decision on your membership application.

 

Categories of membership
EUPATI CH has the following membership categories:

  • Ordinary members: individual persons,
  • Ordinary members: institution representatives
  • Supporting members with no voting rights: institutions who wish to financially support without conditions

 

Application form
You can download the application form here

 

Membership fees
Membership fees for 2020 were determined by the General Assembly on April 23, 2020, a hardship clause exists for individuals who cannot pay this amount (see statutes):

  • Individual persons: CHF 30.-
  • Institutions / Organisations: at least CHF 50.- (but are most welcome to pay a higher amount)
  • Supporting Institutions / Organisations: CHF 2000.-