Self-study online course for patients, relatives and interested lay people
Patient involvement in medical research
Medical research continuously improves diagnostic and treatment options. Using easy-to-understand texts, images and animations, this course series explains how medical research works and provides the knowledge needed to understand how research projects are planned and carried out. It also explains how patients can get involved and help shape research themselves.
New research findings are most valuable when they address the real needs and expectations of the patients concerned. This works best when patients themselves or people close to them can contribute to the planning and design of new research projects.
The content of this online course is based on the training course “EUPATI Switzerland Patient Expert” and was developed jointly by the Department of Clinical Research (DKF) of the University of Basel and EUPATI Switzerland.
Course modules
The course consists of 6 modules. Basic modules A and B provide fundamental knowledge about medical research; advanced modules 1–4 show in which areas of medical research patients or their representatives can actively participate.
Basic module A: Fundamentals of research involving humans
Basic module B: Ethical and legal aspects with a focus on Switzerland
Advanced module 1: Research priorities and study methodology
Advanced module 2: Implementing ethical and legal requirements
Advanced module 3: Informing and communicating
Advanced module 4: Translating new findings into practice
Target audience
Anyone interested in medical research. No prior knowledge required.
Course information
Information about the course
Course fees
The course is free of charge.
After working through the course modules, participants can take a knowledge test to check their learning progress and receive a personal certificate. An administrative fee of CHF 100 is charged for this.
Extended course
The course modules described above are also part of the course “Patient involvement in medical research: EUPATI Switzerland Patient Expert training course”. In that course, participants attend a course day after each module, where the content and topics are explored in more depth and practised in class.
Taking the extended course is optional. It is intended for people who would like to engage more deeply with patient involvement in medical research and help shape research at expert level.
Contact
Mareike Gräter
[email protected]
Phone +41 61 328 54 16
Registration
Please register using the online registration form.
Lancierung der ersten Schweizer Patientenschulung von EUPATI CH
Ausbildungskurs zur/zum «EUPATI Schweiz Patientenexpertin/-experten»
Patientenbeteiligung in der medizinischen Forschung
EUPATI CH freut sich, Ihnen in Zusammenarbeit mit der Abteilung für klinische Forschung des Universitätsspitals Basel eine auf schweizerische Verhältnisse zugeschnittene Fortbildung in Landessprache anbieten zu können. Der Kurs fokussiert auf die klinische Forschung in der Schweiz und befähigt die Teilnehmenden, sich sinnvoll im Bereich der klinischen Forschung zu engagieren. Die Kursbeschreibung und weitere Details finden Sie in dem Flyer.
Weitere Informationen und Anmeldung auf der Webseite.
Swiss patient engagement stakeholder analysis
We are happy to share our publication on the “The Role of EUPATI CH in Promoting Patient Involvement in Clinical Research: A Multi-Stakeholder Research Project” just out in Frontiers in Medicine. We identified some of the difficulties in promoting PI in medicines R&D in Switzerland, in particular the complex collaboration among stakeholders and a lack of funds, human resources, and knowledge. To respond to these difficulties, EUPATI CH has begun preparing a basic training course for patients that is adapted to Switzerland.
Sessa C, Schmid C, Tolotti A, Magnin A, Haerry D, Bonetti L and Klingmann I (2021). The Role of EUPATI CH in Promoting Patient Involvement in Clinical Research: A Multi-Stakeholder Research Project. Front. Med. 8:795659. doi: 10.3389/fmed.2021.795659
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Highlights:
- News from the Executive Board
- Our activities: The Swiss Patient Forum
- EUPATI CH participation activities
- COVID-19 resources for patients
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