Rosmarie Pfau is the founder and president of the volunteer-led, non-profit patient organisation Lymphome.ch patient network Switzerland.
Rosmarie Pfau was diagnosed in 1999 with follicular lymphoma, which subsequently developed into aggressive diffuse large B-cell lymphoma (DLBCL). After several chemo- and radiotherapy cycles, high-dose chemotherapy became necessary in 2006, followed by autologous stem cell transplantation.
Since 2001 R. Pfau has been the contact person for lymphoma patients and relatives in Switzerland. She supports and accompanies those affected during the course of illness and therapy. She leads four regional discussion groups and advises those affected and their relatives in personal talks over the phone and online. She works actively on the development of information material for lymphoma sufferers and organises patient symposia in different Swiss cities with the aim of helping patients to understand their illness better and also to sensitise the public to the signs and symptoms of a lymphoma (awareness).
R. Pfau is active as a patient representative in various organisations, advisory boards and working groups in the hemato-oncological field, such as on the board of the International Lymphoma Coalition, the National Platform EUPATI CH and the Cancer League of both Basel. As a member of the EHA Scientific Working Group, Quality of Life and Symptoms, the EHA Patient Advocates, the Swissmedic Working Group for Patient and Consumer Organizations, the Patient Council of the Swiss Association for Clinical Cancer Research (SAKK) and is a Fellow of the European Patients’ Academy on Therapeutic Innovation (EUPATI).
“EUPATI made a big change in my life. I learned how important the patient involvement in all parts of the process is and to enter the patient’s experience into the engagement with other stakeholders.”