EUPATI CH is delighted to welcome the new and returning Executive Board members (all in a volunteer role). The result of the elections held on 23.04.2020 saw Ivo Schauwecker newly elected president, Hansruedi Völkle (vice president), Caecilia Schmid (Secretariat), and board members Rosmarie Pfau, Marie Mi Bonde Hansen, Cristiana Sessa, Annette Magnin, Larisa Aragon, Stephan…Read More
“The digital patient” – Are patients sufficiently competent in the increasing digitalisation in healthcare? Under what conditions are patients willing to cooperate and make use of the digitalisation? What hopes and fears are associated with this? What wishes and demands can be derived from this? At the third Swiss Patient Forum held on 25…Read More
Dr Nicole Gusset is founder and president of SMA Schweiz, an organisation aiming to recognise and encourage promising research approaches in spinal muscular atrophy (SMA) and bringing these therapies to the patients. SMA is a rare genetic neuromuscular disease characterised by muscle atrophy and weakness. Ever since her firstborn daughter, Victoria, was diagnosed in 2011…Read More
What is quality of life for patients? How do we define it, we who struggle with it? And what do we need to improve it, practically? At the Swiss Patient Forum held on 28 September 2018, EUPATI CH brought together a vibrant group of patients, representatives, and their caretakers to brainstorm these burning questions in…Read More
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