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The Swiss Patient Forum 2018

By Caecilia Schmid | 10/04/2018 | 0 Comments

What is quality of life for patients? How do we define it, we who struggle with it? And what do we need to improve it, practically? At the Swiss Patient Forum held on 28 September 2018, EUPATI CH brought together a vibrant group of patients, representatives, and their caretakers to brainstorm these burning questions in…

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Malena Vetterli

By Caecilia Schmid | 08/08/2018 | 0 Comments

Malena Vetterli, founder and president of FMF & AID Global Association: Familial Mediterranean Fever and Autoinflammatory Diseases, established in Zurich in 2017. The association has been elected into the European Reference Networks (ERN) Patient Advocacy Group, to actively represent patients. Malena is also a member of the Novartis Autoinflammatory Council and has been asked to…

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Hansruedi Völkle

By Caecilia Schmid | 05/03/2018 | 0 Comments

Dr Hansruedi Völkle (Positivrat), you will know him as our EUPATI CH President, but through this training, he is switching from being a teacher of students, to a student himself. Hansruedi originally studied physics and radiation protection, obtained his PhD, and became Professeur Titulaire at Fribourg University. He then worked for many years at the…

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EURORDIS Summer School 2018

By Caecilia Schmid | 11/20/2017 | 0 Comments

EURORDIS Summer School 2018 (11 – 15 June 2018 in Barcelona) Patients are taking on ever increasing roles in advocating for medicines development, equal access to treatments across Europe and ensuring that medical information is clear, accurate and comprehensible. In order to help prepare them for these roles and as part of its commitment to empowering…

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The Swiss portal for clinical trials (SNCTP)

By Caecilia Schmid | 11/16/2017 | 0 Comments

Are you looking for a clinical trial in Switzerland? These must be published on the research portal and can be publicly accessed. The online portal is operated by the FOPH and can be found on the website of the Portal for Human Research , which is operated by the FOPH. Further information is given on…

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