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The Swiss Patient Forum 2019

By Caecilia Schmid | 05/08/2019 | 0 Comments

25 october 2019, in Bern – “The digital patient” The Swiss Patient Forum 2019 will focus on the “digital patient” and the successful format of last years was retained: morning workshop for patients and patient advocates followed by an afternoon public plenary session. Attendance is free, however registration mandatory; the event language will be german:…

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EUPATI CH Flyers and Postcards

By Caecilia Schmid | 12/06/2018 | 0 Comments

We are pleased to to share the new, web-friendly pdfs of our released EUPATI CH flyers with you. They are in four languages: English, French, German, and Italian. We also have Postcards 2018 in all four languages. Please use them as you see fit.

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Nicole Gusset

By Caecilia Schmid | 12/04/2018 | 0 Comments

Dr Nicole Gusset is founder and president of SMA Schweiz, an organisation aiming to recognise and encourage promising research approaches in spinal muscular atrophy (SMA) and bringing these therapies to the patients. SMA is a rare genetic neuromuscular disease characterised by muscle atrophy and weakness. Ever since her firstborn daughter, Victoria, was diagnosed in 2011…

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The Swiss Patient Forum 2018

By Caecilia Schmid | 10/04/2018 | 0 Comments

What is quality of life for patients? How do we define it, we who struggle with it? And what do we need to improve it, practically? At the Swiss Patient Forum held on 28 September 2018, EUPATI CH brought together a vibrant group of patients, representatives, and their caretakers to brainstorm these burning questions in…

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Malena Vetterli

By Caecilia Schmid | 08/08/2018 | 0 Comments

Malena Vetterli, founder and president of FMF & AID Global Association: Familial Mediterranean Fever and Autoinflammatory Diseases, established in Zurich in 2017. The association has been elected into the European Reference Networks (ERN) Patient Advocacy Group, to actively represent patients. Malena is also a member of the Novartis Autoinflammatory Council and has been asked to…

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