Who are the Swiss EUPATI Fellows and trainees?
EUPATI offered 150 patients from across Europe the chance to join a 14-month Patient Expert Training Course. In Switzerland, four applicants were accepted in the first two cycles with two undertaking studies in October 2014, and another two in September 2015. The course participants graduated together in December 2016 at an official ceremony in Brussels. EUPATI Switzerland Fellows are patients, patient organisation representatives, patient advocates, and carers or family members.
The third training cycle started in September 2017 with four participants from Switzerland.
The course offers a blended learning experience with modules and assessments completed online and complemented by two week-long face-to-face programmes. Topics covered include the discovery of medicines and the planning of medicines development; non-clinical testing and pharmaceutical development; exploratory and confirmatory clinical development; clinical trials; regulatory affairs, medicinal safety, pharmacovigiliance and pharmacoepidemology; and health technology assessment principles and practices.
Course content is developed by the EUPATI consortium and a list of partners involved can be found here.
Upon completing their studies, EUPATI Fellows become patient experts in the medicines research and development process, and we invite medicines research and development partners to use their knowledge to ensure a patient perspective in early research design, clinical trial management, ethics committee reviews, regulatory committees and much much more.
If you would like to contact one of the EUPATI Switzerland Fellows please complete the form below.
Meet the Swiss EUPATI Fellows
Dr Nicole Gusset is founder and president of SMA Schweiz, an organisation aiming to recognise and encourage promising research approaches in spinal muscular atrophy (SMA) and bringing these therapies to the patients. SMA is a rare genetic neuromuscular disease characterised by muscle atrophy and weakness. Ever since her firstborn daughter, Victoria, was diagnosed in 2011…Read More
Malena Vetterli, founder and president of FMF & AID Global Association: Familial Mediterranean Fever and Autoinflammatory Diseases, established in Zurich in 2017. The association has been elected into the European Reference Networks (ERN) Patient Advocacy Group, to actively represent patients. Malena is also a member of the Novartis Autoinflammatory Council and has been asked to…Read More
Dr Hansruedi Völkle (Positivrat), you will know him as our EUPATI CH President, but through this training, he is switching from being a teacher of students, to a student himself. Hansruedi originally studied physics and radiation protection, obtained his PhD, and became Professeur Titulaire at Fribourg University. He then worked for many years at the…Read More
Florian Klett, EUPATI Fellows Alumni Coordinator He studied Adventure Tourism Management (BA) and Project Management (MSc) in Birmingham, UK. Passionate about working with people, he is PARE Programme Manager at the European League Against Rheumatism – EULAR (www.eular.org) and General Secretary at FOREUM – Foundation for Research in Rheumatology (www.foreum.org). At EULAR he monitors the…Read More
Estelle Jobson is from South Africa and has a background in editing, writing, scholarly and educational publishing. She works full-time as a corporate writer in Geneva. Estelle was a board member and carried out international activities for the US-based Endometriosis Association for five years. She is now involved in endometriosis awareness and activism with Swiss…Read More
Rosmarie Pfau is the founder and president of the volunteer-led, non-profit patient organisation Lymphome.ch patient network Switzerland. Rosmarie Pfau was diagnosed in 1999 with follicular lymphoma, which subsequently developed into aggressive diffuse large B-cell lymphoma (DLBCL). After several chemo- and radiotherapy cycles, high-dose chemotherapy became necessary in 2006, followed by autologous stem cell transplantation. Since…Read More
Peter Lack is the CEO of Childhood Cancer Switzerland and freelance worker as coach, organisational consultant, project manager, lecturer and author for companies and NGO’s with focus on health care and ethical issues of end-of-life care (www.peterlack.ch). Peter graduated as a theologist and not-for-profit manager and has a long history in philanthropic engagement. Peter is…Read More