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EUPATI CH Ambassadors

Liz Isler

 

Liz Isler graduated as a Reg. Nurse AKP HF with further education in palliative and emergency care, Reg. Patient Administration Manager PAM, Reg. Medical Secretary HWS and Reg. Graduated Teacher for Adult Education FHBW HSW.

Liz was diagnosed with multiple sclerosis (MS) in 2001, today she is in need of a motorised wheelchair and many other technical aids to ease her life. Her husband is a long-term survivor of lung cancer, today partially paralysed and in need of oxygen and her youngest son suffers from cystic fibrosis.

In 1991 Liz founded the first specialised palliative home care centre for AIDS patients in Switzerland that was attached to a hospital external care centre. Liz is president, founder and CEO of the national umbrella Swiss Lung & Head-Neck Cancer and MS (Multiple Sclerosis) International Mobility Network Associations as well as vice-president, secretary and co-founder of the Swiss Patient Coalition and Secretary of Europa Uomo Switzerland (Umbrella organisation for men’s cancer) resp. president of the same called foundation.

Liz is member of several societies and patient delegate in the research advisory board of SMSG and holds seats nationally and internationally in patient advocate expert groups, medical and para-medical committees advocating for optimising health care, palliative care, therapy guidelines, social and health political issues, supporting mobility and disabled access. Her biggest political level success was in 1998 preventing the launching of a planned new medical law concerning alternative medicine.

Nicole Scobie

 

Nicole Scobie is the President of Zoé4life, a non-profit organization based in Switzerland which supports kids with cancer and their families, funds pediatric oncology research, and establishes programs for children during cancer treatment. She is also a founding member of Unite2Cure, an international collaboration of parents, survivors and patient advocates, working together to identify roadblocks and accelerate the development of new pediatric cancer medications. She has recently joined the Childhood Cancer International, Europe Regional Committee and will focus on the subject of research in pediatric oncology.

Nicole has a parent’s perspective and thorough knowledge of childhood cancer treatments, side effects and late effects. She is a board-member of PACRT (Patient Advocates for Cancer Research and Treatment) and member of CAC2 (Coalition Against Childhood Cancer). She has been an outspoken advocate for childhood cancer, and arranged for Geneva’s iconic Jet d’Eau to be illuminated in gold to raise awareness during the month of September. She writes about childhood cancer and has been published on Huffington Post, FacingCancer.ca, CureMagazine, CopingMagazine, Brain Child, TheTRUTH365 and SU2C. Her son Elliot, now 9 years old, is in remission from stage 4 cancer.

“I am looking forward to working as a EUPATI Ambassador in order to help patients and their carers become effective advocates with meaningful involvement in medical research and development.”