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CH Fellows

Nicole Gusset

Dr Nicole Gusset is founder and president of SMA Schweiz, an organisation aiming to recognise and encourage promising research approaches in spinal muscular atrophy (SMA) and bringing these therapies to the patients. SMA is a rare genetic neuromuscular disease characterised by muscle atrophy and weakness. Ever since her firstborn daughter, Victoria, was diagnosed in 2011…

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Malena Vetterli

Malena Vetterli, founder and president of FMF & AID Global Association: Familial Mediterranean Fever and Autoinflammatory Diseases, established in Zurich in 2017. The association has been elected into the European Reference Networks (ERN) Patient Advocacy Group, to actively represent patients. Malena is also a member of the Novartis Autoinflammatory Council and has been asked to…

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Hansruedi Völkle

Dr Hansruedi Völkle (Positivrat), you will know him as our EUPATI CH President, but through this training, he is switching from being a teacher of students, to a student himself. Hansruedi originally studied physics and radiation protection, obtained his PhD, and became Professeur Titulaire at Fribourg University. He then worked for many years at the…

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Florian Klett

Florian Klett, EUPATI Fellows Alumni Coordinator He studied Adventure Tourism Management (BA) and Project Management (MSc) in Birmingham, UK. Passionate about working with people, he is PARE Programme Manager at the European League Against Rheumatism – EULAR (www.eular.org) and General Secretary at FOREUM – Foundation for Research in Rheumatology (www.foreum.org). At EULAR he monitors the…

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Estelle Jobson

Estelle Jobson is from South Africa and has a background in editing, writing, scholarly and educational publishing. She works full-time as a corporate writer in Geneva. Estelle was a board member and carried out international activities for the US-based Endometriosis Association for five years. She is now involved in endometriosis awareness and activism with Swiss…

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Rosemarie Pfau

Rosmarie Pfau is the founder and president of the volunteer-led, non-profit patient organisation Lymphome.ch patient network Switzerland. Rosmarie Pfau was diagnosed in 1999 with follicular lymphoma, which subsequently developed into aggressive diffuse large B-cell lymphoma (DLBCL). After several chemo- and radiotherapy cycles, high-dose chemotherapy became necessary in 2006, followed by autologous stem cell transplantation. Since…

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Peter Lack

Peter Lack is the CEO of Childhood Cancer Switzerland and freelance worker as coach, organisational consultant, project manager, lecturer and author for companies and NGO’s with focus on health care and ethical issues of end-of-life care (www.peterlack.ch). Peter graduated as a theologist and not-for-profit manager and has a long history in philanthropic engagement. Peter is…

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