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Posts by Caecilia Schmid

The Swiss Patient Forum 2019

25 october 2019, in Bern – “The digital patient” The Swiss Patient Forum 2019 will focus on the “digital patient” and the successful format of last years was retained: morning workshop for patients and patient advocates followed by an afternoon public plenary session. Attendance is free, however registration mandatory; the event language will be german:…

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Max Lippuner

Max Lippuner, founder and president of Europa Uomo Switzerland (EUS, umbrella organisation for men’s cancer, in particular prostate, testicles, bladder and urethra cancer) is a prostate cancer patient since 2007. In 2011 he was elected as the president of the Swiss Patient-Coalition, founded by the cancer league. He is very interested in the Swiss health…

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Introducing the EUPATI CH Secretariat

Behind the scenes of EUPATI Switzerland, plenty of work gets done. Meet our small, yet industrious Secretariat (from left to right): Rosine Mucklow, Caecilia Schmid, and Estelle Jobson. The Swiss Clinical Trial Organisation (SCTO), where we are based, hosts the Secretariat to support patient engagement in the country.

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EUPATI CH Flyers and Postcards

We are pleased to to share the new, web-friendly pdfs of our released EUPATI CH flyers with you. They are in four languages: English, French, German, and Italian. We also have Postcards 2018 in all four languages. Please use them as you see fit.

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Nicole Gusset

Dr Nicole Gusset is founder and president of SMA Schweiz, an organisation aiming to recognise and encourage promising research approaches in spinal muscular atrophy (SMA) and bringing these therapies to the patients. SMA is a rare genetic neuromuscular disease characterised by muscle atrophy and weakness. Ever since her firstborn daughter, Victoria, was diagnosed in 2011…

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The Swiss Patient Forum 2018

What is quality of life for patients? How do we define it, we who struggle with it? And what do we need to improve it, practically? At the Swiss Patient Forum held on 28 September 2018, EUPATI CH brought together a vibrant group of patients, representatives, and their caretakers to brainstorm these burning questions in…

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Malena Vetterli

Malena Vetterli, founder and president of FMF & AID Global Association: Familial Mediterranean Fever and Autoinflammatory Diseases, established in Zurich in 2017. The association has been elected into the European Reference Networks (ERN) Patient Advocacy Group, to actively represent patients. Malena is also a member of the Novartis Autoinflammatory Council and has been asked to…

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Hansruedi Völkle

Dr Hansruedi Völkle (Positivrat), you will know him as our EUPATI CH President, but through this training, he is switching from being a teacher of students, to a student himself. Hansruedi originally studied physics and radiation protection, obtained his PhD, and became Professeur Titulaire at Fribourg University. He then worked for many years at the…

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EURORDIS Summer School 2018

EURORDIS Summer School 2018 (11 – 15 June 2018 in Barcelona) Patients are taking on ever increasing roles in advocating for medicines development, equal access to treatments across Europe and ensuring that medical information is clear, accurate and comprehensible. In order to help prepare them for these roles and as part of its commitment to empowering…

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The Swiss portal for clinical trials (SNCTP)

Are you looking for a clinical trial in Switzerland? These must be published on the research portal and can be publicly accessed. The online portal is operated by the FOPH and can be found on the website of the Portal for Human Research , which is operated by the FOPH. Further information is given on…

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